Der Verein NichtGenesen sucht eine*n Kranfahrer*in, der*die dieses Banner (10x3 Meter) am 23.08. zum Tag der offenen Tür vorm Bundesministerium für Forschung (BMFTR) in Berlin hochzieht. 10:00 Uhr bis 17:00 Uhr.

Bitte weitersagen bzw boosten.

Email: info@nichtgenesen.org

Danke!

When my watch notifies me of a ‘perfect move week’ it hits so much different than it did for me before long covid.

I think a large part of my (70%ish) recovery has been radical rest. Lots of it. Forcing myself to rest for YEARS when I didn’t want to. To dial my life back to the basics. To ask for help. To use mobility aids. To going to therapy. The luxury of not having to go to work (disability) or raise a family helped, too.

Next month marks 3 years since my symptoms started. I’ve come so far and I’m so proud of what I’ve accomplished in spite of my body having ulterior motives.

7NEWS Adelaide

"There is fresh hope for long COVID sufferers, who are battling debilitating symptoms and get a diagnosis. Researchers are working to give patients answers with a blood test. Call the Long-COVID clinic at the Royal Adelaide Hospital to participate - 0418 890 857"

#LongCOVID @auscovid19

Source: https://x.com/7NewsAdelaide/status/1957015609692295369

2025-August-15 Friday

214 Americans Died Last Week From COVID 19

1,230,911 Americans Dead From COVID 19 In Total

New UK research:

Mitochondrial function is impaired in #longCOVID patients

https://www.tandfonline.com/doi/full/10.1080/07853890.2025.2528167

"Correlations were observed between mitochondrial function and autonomic health, quality of life & time from index infection. Sex-specific differences were also observed”

@longcovid
#PwLC #PostCovidSyndrome #LC #PASC #postcovid
#CovidBrain
@covid19 #COVIDー19 #COVID19 #COVID #COVID_19 #SARSCoV2 #CovidIsNotOver #auscovid19 @auscovid19

Incidence of Long COVID Following Reinfection with COVID-19

https://www.medrxiv.org/content/10.1101/2025.08.12.25333155v1

RECOVER study. "We found COVID-19 reinfection resulted in a roughly 35% increase in the incidence of #longCOVID in a matched cohort using observational electronic health records”

@longcovid
#PwLC #PostCovidSyndrome #LC #PASC #postcovid #CovidBrain
@covid19 #COVIDー19 #COVID19 #COVID #COVID_19 #SARSCoV2 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver #auscovid19 @auscovid19

I may have found a way to hack capitalism to purchase a building for collective convalescent housing.

This poll is to get a feel for reach and support, to see if #turtleBower could in fact pull this off.

Rough math, circa 3000+ people chipping in $10

This is basically #mutalAid at the collective level.

If we can make this housing happen we have a template for others to use.

Pls vote & boost.

https://disabled.social/@vlrny/115035488756724553

"Their research team found that for every 20 adults with #COVID, between 2 and 5 developed #LongCovid. And for every 25 #children with COVID, 1 developed Long Covid."

https://solvecfs.org/nih-recover-study-analyzes-electronic-health-records-to-estimate-long-covid-incidence/

We all ate ice cream in bed tonight. #dogsofmastodon #mecfs #LongCovid

"In der Schweiz leben rund eine halbe Million Menschen mit Long Covid und ME. Doch sie kämpfen nicht nur gegen eine unheilbare Krankheit – sondern auch gegen Stigma, Fehldiagnosen und lebensbedrohliche Behandlungen."

https://daslamm.ch/chronisch-krank-und-permanent-angezweifelt/

Please boost for wider reach

My friend & fellow local activist, Mary, has organized & is hosting this #AllInclusive #Accessible #SilentDJ #DanceParty at #BeaconHillPark in late September.

She has #LongCovid & became #disabled from it. The fight to save the only long covid clinic here is still needing public support.

https://www.change.org/p/josie-osborne-protect-access-to-care-for-long-covid-me-cfs-and-fibromyalgia-patients

https://www.lifelinebc.ca/campaign

In der Wahrnehmung großer Teile der Gesellschaft gilt in Bezug auf #Covid und dessen Folgen: Gestorben oder gesund überstanden. Dass weltweit zig Millionen schwer erkrankt sind, spielt keine Rolle. Impfung oder Psyche wegen Panikmache.

Was für ein erbärmlicher Haufen. Dass Menschen z.T. seit Jahren schwerst erkrankt sind, auch komplett hausgebunden oder bettlägerig: Kein Thema. Und wenn, dann Psyche oder Impfung.
Und das geht einfach immer so weiter und wird immer schlimmer.
#MEcfs #LongCovid

Trotz Bettlägerigkeit Pflegegrad 0

Der 19-jährige Hamburger Theo L. ist nach einer Corona-Infektion schwer an #MECFS erkrankt: Er ist seit Ende 2023 bettlägerig, kaum sprechfähig und vollständig auf Hilfe angewiesen. Dennoch stufte der Medizinische Dienst ihn zuletzt auf Pflegegrad 0 herab – offiziell keine Pflegebedürftigkeit.

#LongCovid

https://www.abendblatt.de/hamburg/hamburg-nord/article409526110/corona-hamburg-theo-bekommt-trotz-bettlaegerigkeit-pflegegrad-null-er-ist-halbtot.html

Well I slept very badly and my body is really struggling but gotta grab some spell slots from somewhere and go run the @Weirdos_Queerdos munches today.

Wat is het heerlijk buiten. Moet flink uitrusten na een kort winkel tripje van 10 minuten. Dacht dat het wel weer ging, maar even bewegen na een week op de bank met een te lage baseline was een slecht plan.
Gelukkig een koel briesje door de tuin en stille bezoekers.

My #LongCovid life